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Topic Areas and Resources List
Currently in early draft form. This report documents authentic, peer-centered perspectives on why individuals struggle to thrive in modern social systems and lifestyles.
Challenges / Problems
1) Medical Racism, Ableism, Sexism (and other -isms)
Video (5 min): How Biases and Racism Play Out in Psychiatry
Video (1 hour): My Racist Therapist & Therapy Microagressions
Includes 20 minute segment of over a dozen impactful user stories of experiencing racism from liscenced counselors
Bethany Morris's Work on Sexism in Psychology...
Book Panel Discussion: Whiteout: How Racial Capitalism Changed the Color of Opioids in America
Article: Beloved Brooklyn teacher, 30, dies of coronavirus after she was twice denied a COVID-19 test
Research Article: Perspectives About Racism and Patient-Clinician Communication Among Black Adults With Serious Illness
"Participants reported high levels of medical mistrust and high frequency of discrimination and microaggressions experienced in health care settings. Participants reported epistemic injustice as the most common manifestation of racism: silencing of their own knowledge and lived experiences about their bodies and illness by health care workers. Participants reported that these experiences made them feel isolated and devalued, especially if they had intersecting, marginalized identities, such as being underinsured or unhoused."
Article: The NFL's reversal on 'race norming' reveals how pervasive medical racism remains
Under the practice of race norming, retired Black players were assumed to have lower baseline levels of cognitive function than retired white players. Black claimants, then, had to demonstrate more impairment to receive the same financial awards as their white counterparts.
"[Programs] can't work if there's no affordable housing to place people into. Kushel said California is about 1 million units short for extremely low-income households ... There are only 23 units of housing for every 100 extremely low-income households, she said."
News Report: TANF: Last Week Tonight with John Oliver
"In Mississippi last year, of roughly 190,000 children living in poverty, just 2,600 were receiving money from TANF, while, remember, of the roughly one Brett Favres in Mississippi, 100% of them managed to get $5 million for [a university] volleyball stadium"
3) Failure of Individuals to Succeed / Thrive Being Moralized as Individual Failure
Partly backed by "why aren't they just using the services and supposed opportunity on offer
Research Article: Using Principles of Trauma-Informed Care to Address Structural Racism in Psychiatric Care
"Just as we are trained to take a family history or assess early childhood experiences, we also have to consider our patients’ encounters with various inequitable structures. Mr. A’s experiences of trauma were individual and specific to him, but they were tied to the structures he interacted with.
Lived Experience Story (Student Debt): Viral TikTok Shows Why Biden Must Cancel Student Debt
4) Critiques of Evidence-Based Approaches in Human Services Research
Planned Future Article: Compliance as a Metric Tracks Control, Not Authentic Thriving
Applied Philosophy Paper: Love and Knowledge: Emotion in Feminist Epistemology
The Western tradition has tended to obscure the vital role of emotion in the construction of knowledge ... the myth of dispassionate investigation has functioned historically to undermine the epistemic authority of women as well as other social groups associated culturally with emotion.
5) Lived Experience (Peer, Expert By Experience, Self-Advocate) Exclusion From Health Knowledge Development and Health Services Design
Blog Article: Working together against faux-production
Blog Article: Co-creation for Social Justice
Embedding voices of marginalized people at the heart of the entire process of a piece of work, crediting and remunerating them for their contributions of both time and knowledge.
Potential Solutions
1) Participatory Research Methods
Support Organization: Co-production Collective
Resource database, monthly support meet-up
2) Participatory Grant-making Methods
Support Organization: Community Centric Fundraising
6000+ Slack channel, content creation
Support Organization: Participatory Grantmakers
Two monthly support meet-ups
3) Lived Experience (Peer, Expert By Experience, Self-Advocate) Inclusion In Health Knowledge Development and Health Services Design
Research Paper: Assessing the Impact of American Indian Peer Recovery Support on Substance Use and Health
- Involvement in Peer Recovery Support (PRS) decreased substance use significantly among peers. Peer attendance at voluntary self-help groups and support from family and friends increased as a result of PRS.
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This article brought to you by the Peer Voices Network, a grassroots and almost wholly unpaid and unfunded effort working to elevate the voice of lived experience in health services design and health research.
This work needs support. Please consider donating, hiring our team as consultants, or linking us to potential funding sources. We enjoy partnering with organizations on development of more accurate and culturally-competent understandings of the societies we live within.
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We can be reached by email at peervoicesnetwork@gmail.com
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